ERN-LUNG

ERN-LUNG is a service oriented network for patients and healthcare providers in rare respiratory diseases across Europe and wants to be the one-stop information hub. 

Our vision is to transfer knowledge and develop expertise through education and training, rather than making patients or experts travel. 

We want to support and train a new generation of highly skilled care teams for rare diseases oft e respiratory system in all Member States .

ERN-LUNG, in cooperation with ERS, has made available useful info and learning material (e.g. webinars, publications) for you.

Enjoy the content!

Educational resources


ILD CF PH

Congress sessions

  • Joint session, Updates in cystic fibrosis (A joint ERS/ECFS symposium), ERS virtual congress 2020
Update on management of lung infection in cystic fibrosis
P. Flume (Charleston, United States of America)
WebcastSlide presentation
WebcastSlide presentation
Update on pancreatic and liver disease in cystic fibrosis
P. Sogni (Paris, France)
WebcastSlide presentation
WebcastSlide presentation
Living with cystic fibrosis: challenges in treatment adherence and social emotional well-being
M. Bryon (London, United Kingdom)
WebcastSlide presentation
WebcastSlide presentation
Update on new treatments for cystic fibrosis
D. Downey (Belfast, Ireland)
WebcastSlide presentation
WebcastSlide presentation
  • Symposium, Cystic fibrosis: from cradle to old age, ERS virtual congress 2020
Lung inflammation in cystic fibrosis: an overlooked therapeutic target?
S. Stick (Perth (WA), Australia)
WebcastSlide presentation
WebcastSlide presentation
Transition from adolescent to adult care
T. Havermans (LEUVEN, Belgium)
WebcastSlide presentation
WebcastSlide presentation
Gastrointestinal issues in cystic fibrosis and their relevance to the lungs
B. Plant (Cork, Ireland)
WebcastSlide presentation
WebcastSlide presentation
Comorbidities of advanced diseases in patients with cystic fibrosis
J. Altenburg (Amsterdam (NH), Netherlands)
WebcastSlide presentation
WebcastSlide presentation
Changing demographics of cystic fibrosis and models of care
S. Elborn (Belfast (Belfast), United Kingdom)
Webcast
Webcast

Webinars

COVID-19 in patients with rare diseases of the respiratory system
DG Sante (European commission), T.O. F. Wagner (Frankfurt/Main, Germany), I. Fajac (Paris, France), M. Kreuter (Heidelberg, Germany), G. Verleden (Leuven, Belgium), M. Humbert (Paris, France), Heymut Omran (Münster, Germany)

Thursday, 30 April 2020
WebcastPDF journal article, handout or slides
WebcastPDF journal article, handout or slides
Novel therapeutics for cystic fibrosis
Marcus Mall (Berlin, Germany)

Thursday, 9 January 2020
WebcastPDF journal article, handout or slides
WebcastPDF journal article, handout or slides

Interactive e-learning content

CME tests

Report of the European Respiratory Society/European Cystic Fibrosis Society task force on the care of adults with cystic fibrosis
Elborn J. Stuart, Bell Scott C., Madge Susan L., Burgel Pierre-Regis, Castellani Carlo, Conway Steven, De Rijcke Karleen, Dembski Birgit, Drevinek Pavel, Heijerman Harry G.M., Innes J. Alistair, Lindblad Anders, Marshall Bruce, Olesen Hanne V., Reimann Andreas L., Solé Ampara, Viviani Laura, Wagner Thomas O.F., Welte Tobias, Blasi Francesco
Eur Respir J 2016; 47: 420-428
Congress or journal article abstractFull text journal articlePDF journal article, handout or slidesCME test or case report
Congress or journal article abstractFull text journal articlePDF journal article, handout or slidesCME test or case report

Webcasts

The cystic fibrosis transmembrane conductance regulator and its modulators: clinical implications
F. Ratjen (Toronto (ON), Canada)
WebcastSlide presentation
WebcastSlide presentation
Mucoviscidose: enfin des traitements ciblés / Cystic fibrosis: targeted therapies, at last !
P. Burgel (Sorbonne Paris Cité, France)
WebcastSlide presentation
WebcastSlide presentation
The need for lung transplantation in cystic fibrosis (CF) in the era of new treatment
C. Benden (Zurich, Switzerland)
WebcastSlide presentation
WebcastSlide presentation
Persistent non-tuberculous mycobacteria in cystic fibrosis
M. Ramphul (Leicester (Leicestershire), United Kingdom)
WebcastSlide presentation
WebcastSlide presentation
Comorbidities of advanced diseases in patients with cystic fibrosis
J. Altenburg (Amsterdam (NH), Netherlands)
WebcastSlide presentation
WebcastSlide presentation
Gastrointestinal issues in cystic fibrosis and their relevance to the lungs
B. Plant (Cork, Ireland)
WebcastSlide presentation
WebcastSlide presentation
Transition from adolescent to adult care
T. Havermans (LEUVEN, Belgium)
WebcastSlide presentation
WebcastSlide presentation
Lung inflammation in cystic fibrosis: an overlooked therapeutic target?
S. Stick (Perth (WA), Australia)
WebcastSlide presentation
WebcastSlide presentation
Ultrasound diaphragm activity in patients with cystic fibrosis: relationship to disease severity and peripheral muscle strength
A. Maynard (Montreal, Canada), F. Tremblay (Montreal, Canada), B. Dubé (Montreal, Canada)
Congress or journal article abstractWebcastE-poster
Congress or journal article abstractWebcastE-poster
A pilot study of a novel ELISA test using synthetic mycolic acid antigens for serodiagnosis of nontuberculous mycobacterial infections.
J. Bashford (Cambridge, United Kingdom), R. Floto (Cambridge, United Kingdom), C. Haworth (Cambridge, United Kingdom), J. Ryan (Cambridge, United Kingdom), J. Al Dulayymi (Wales, United Kingdom), A. Cervi (Wales, United Kingdom), M. Baird (Wales, United Kingdom)
Congress or journal article abstractWebcastE-poster
Congress or journal article abstractWebcastE-poster
A First Look at the Italian Registry on Pulmonary Non-Tuberculous Mycobacteria (NTM) -IRENE
S. Aliberti (Milano, Italy), M. Spotti (Milano, Italy), G. Sotgiu (Sassari, Italy), M. Ferrarese (Milano, Italy), P. Castellotti (Milano, Italy), A. Gramegna (Milano, Italy), M. Tadolini (Bologna, Italy), J. Mencarini (Firenze, Italy), G. Gualano (Roma, Italy), S. Cerri (Modena, Italy), G. Montemurro (Roma, Italy), G. Gardini (Brescia, Italy), A. Calcagno (Torino, Italy), F. Dente (Pisa, Italy), M. Trezzi (Pistoia, Italy), P. Faverio (Monza, Italy), M. Malerba (Vercelli, Italy), G. Cucchetto (Verona, Italy), E. Tortoli (Milano, Italy), M. Mirsaeidi (Miami, United States of America), A. Previdi (Milano, Italy), A. Gori (Milano, Italy), L. Codecasa (Milano, Italy), F. Blasi (Milano, Italy), .. On Behalf Of The Irene Network (Milano, Italy)
Congress or journal article abstractWebcast
Congress or journal article abstractWebcast
Pseudomonas aeruginosa influences the inflammatory response of primary bronchial epithelial cells to rhinovirus infection
A. Endres (Frankfurt am Main, Germany), R. Schubert (Frankfurt am Main, Germany), P. Braubach (Hanover, Germany), D. Jonigk (Hanover, Germany), M. Hogardt (Frankfurt am Main, Germany), H. Boland (Frankfurt am Main, Germany), G. Rohde (Frankfurt am Main, Germany), C. Bellinghausen (Frankfurt am Main, Germany)
Congress or journal article abstractWebcastE-poster
Congress or journal article abstractWebcastE-poster
Using integrated omics to assess the effects of rhinovirus infection in children with Cystic Fibrosis (CF).
P. Agudelo-Romero (Perth (WA), Australia), K. Martinovich (Perth (WA), Australia), J. Chandler (Atlanta (GA), United States of America), K. Ling (Perth (WA), Australia), E. Sutanto (Perth (WA), Australia), D. Jones (Atlanta (GA), United States of America), R. Tirouvanzium (Atlanta (GA), United States of America), S. Stick (Perth (WA), Australia), L. Garratt (Perth (WA), Australia), A. Kicic (Perth (WA), Australia), W. Erp (Perth (WA), Australia), A. Cf (Perth (WA), Australia)
Congress or journal article abstractWebcastE-poster
Congress or journal article abstractWebcastE-poster
Multiple-breath washout and pulmonary function tests versus high-resolution computed tomography scores in adults with cystic fibrosis.
A. Cherniak (Moscow, Russian Federation), Z. Naumenko (Moscow, Russian Federation), S. Krasovskiy (Moscow, Russian Federation), K. Mikhailichenko (Moscow, Russian Federation), G. Nekludova (Moscow, Russian Federation)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Interpretation of multiple breath washout (MBW) measurements of lung function using mathematical modelling and hyperpolarised 3He gas MRI
C. Whitfield (Manchester, United Kingdom), L. Smith (Sheffield, United Kingdom), O. Jensen (Manchester, United Kingdom), N. West (Sheffield, United Kingdom), M. Wildman (Sheffield, United Kingdom), G. Collier (Sheffield, United Kingdom), J. Wild (Sheffield, United Kingdom), A. Horsley (Manchester, United Kingdom)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Correlation of Hyperpolarised Xenon-129 Magnetic Resonance Imaging (129Xe-MRI) of the Lung with Multi-Breath Washout (MBW) in Children with Severe Asthma
S. Safavi (Nottingham, United Kingdom), B. Zanette (Toronto, Canada), S. Munidasa (Toronto, Canada), E. Stirrat (Toronto, Canada), D. Li (Toronto, Canada), T. Moraes (Toronto, Canada), P. Subbarao (Toronto, Canada), G. Santyr (Toronto, Canada)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Ivacaftor/lumacaftor changes the lung microbiome and metabolome in cystic fibrosis patients
A. Neerincx (Amsterdam, Netherlands), K. Whiteson (Irvine, California, United States of America), J. Phan (Irvine, California, United States of America), P. Brinkman (Amsterdam, Netherlands), M. Abdel-Aziz (Amsterdam, Netherlands), E. Weersink (Amsterdam, Netherlands), J. Altenburg (Amsterdam, Netherlands), C. Majoor (Amsterdam, Netherlands), A. Maitland-Van Der Zee (Amsterdam, Netherlands), L. Bos (Amsterdam, Netherlands)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Feasibility of unsedated lung MRI in preschoolers with Cystic fibrosis – a comparison to lung function.
C. Willers (Bern, Switzerland), B. Frauchiger (Bern, Switzerland), Y. Salem (Bern, Switzerland), P. Latzin (Bern, Switzerland), K. Ramsey (Bern, Switzerland)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Multivolume magnetic resonance imaging (1H-MRI) for the longitudinal assessment of cystic fibrosis (CF) lung disease: comparison with spirometry
F. Pennati (Milano (MI), Italy), I. Borzani (Milano (MI), Italy), L. Moroni (Milano (MI), Italy), M. Russo (Milano (MI), Italy), A. Aliverti (Milano (MI), Italy), C. Colombo (Milano (MI), Italy)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Longitudinal assessment of Lung Clearance Index as a marker of disease progression in a cohort of children with cystic fibrosis and normal spirometry
J. Spano (Palo Alto, United States of America), S. Ryan (Palo Alto, United States of America), C. Milla (Palo Alto, United States of America)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
The Lung Clearance Index detects incomplete lung function recovery with acute respiratory events in school-age children with cystic fibrosis
L. Perrem (Toronto (ON), Canada), S. Stanojevic (Toronto (ON), Canada), M. Shaw (Toronto (ON), Canada), R. Jensen (Toronto (ON), Canada), J. Guido (Toronto (ON), Canada), M. Solomon (Toronto (ON), Canada), H. Grasemann (Toronto (ON), Canada), N. Sweezey (Toronto (ON), Canada), S. Davies (North Carolina, United States of America), D. Sanders (Indianapolis, United States of America), N. Mcdonald (Toronto (ON), Canada), S. Isaac (Toronto (ON), United States of America), S. Jara (Indianapolis, United States of America), C. Clem (Indianapolis, United States of America), F. Ratjen (Toronto (ON), Canada)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Early determinants of lung disease in children with cystic fibrosis
S. Stanojevic (Toronto (ON), Canada), S. Davis (Chapel Hill, United States of America), D. Sanders (Indianapolis, United States of America), L. Perem (Toronto (ON), Canada), M. Shaw (Toronto (ON), Canada), J. Guido (Toronto (ON), Canada), R. Jensen (Toronto (ON), Canada), S. Jara (Indianapolis, United States of America), C. Clem (Toronto (ON), Canada), M. Solomon (Toronto (ON), Canada), N. Sweezey (Toronto (ON), Canada), H. Grasemann (Toronto (ON), Canada), V. Waters (Toronto (ON), Canada), F. Ratjen (Toronto (ON), Canada)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Longitudinal course of clinically measured lung clearance index in children with cystic fibrosis
B. Frauchiger (Bern, Switzerland), S. Binggeli (Bern, Switzerland), S. Yammine (Bern, Switzerland), B. Spycher (Bern, Switzerland), K. Ramsey (Bern, Switzerland), P. Latzin (Bern, Switzerland)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Lung clearance index and functional MRI outcomes to assess lung disease in preschool children with cystic fibrosis
B. Frauchiger (Bern, Switzerland), C. Willers (Bern, Switzerland), Y. Salem (Bern, Switzerland), P. Latzin (Bern, Switzerland), K. Ramsey (Bern, Switzerland)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Late Breaking Abstract - Use of ultra-low dose CT does not impact structure-function relationships in early Cystic Fibrosis lung disease
K. Bayfield (Sydney, Australia), O. Weinheimer (Heidelberg, Germany), C. Boyton (Sydney, Australia), R. Fitzpatrick (Sydney, Australia), A. Middleton (Sydney, Australia), B. Kennedy (Sydney, Australia), A. Blaxland (Sydney, Australia), G. Jayasuriya (Sydney, Australia), N. Caplain (Sydney, Australia), M. Wielpuetz (Heidelberg, Germany), L. Yu (Minneosota, United States of America), C. Galban (Michigan, United States of America), T. Robinson (Stanford, United States of America), B. Bartholmai (Minneosota, United States of America), P. Gustafsson (Skövde, Sweden), D. Fitzgerald (Sydney, Australia), H. Selvadurai (Sydney, Australia), P. Robinson (Sydney, Australia)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Late Breaking Abstract - Effects of long-term Tobramycin Inhalation Solution (TIS) once daily on exacerbation rate in patients with non-cystic fibrosis bronchiectasis. The BATTLE Randomized Controlled Trial
L. Terpstra (Alkmaar (NH), Netherlands), I. Bronsveld (Utrecht, Netherlands), J. Doodeman (Alkmaar (NH), Netherlands), W. Rozenmeijer (Alkmaar (NH), Netherlands), H. Heijerman (Utrecht, Netherlands), W. Boersma (Alkmaar (NH), Netherlands)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Genomically-guided therapies: a new era for cystic fibrosis
M. Mall (Berlin, Germany)
WebcastSlide presentation
WebcastSlide presentation
Volumetric capnography: a promising lung function test in cystic fibrosis?
A. Kentgens (Bern, Switzerland), O. Lagiou (Patras, Greece), B. Frauchiger (Bern, Switzerland), F. Wyler (Bern, Switzerland), I. Theodorakopoulos (Patras, Greece), S. Yammine (Bern, Switzerland), S. Fouzas (Patras, Greece), P. Latzin (Bern, Switzerland)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster
Update on new treatments for cystic fibrosis
D. Downey (Belfast, Ireland)
WebcastSlide presentation
WebcastSlide presentation
Living with cystic fibrosis: challenges in treatment adherence and social emotional well-being
M. Bryon (London, United Kingdom)
WebcastSlide presentation
WebcastSlide presentation
Update on pancreatic and liver disease in cystic fibrosis
P. Sogni (Paris, France)
WebcastSlide presentation
WebcastSlide presentation
Update on management of lung infection in cystic fibrosis
P. Flume (Charleston, United States of America)
WebcastSlide presentation
WebcastSlide presentation
Biofilms and how to combat them: examples from cystic fibrosis
T. Bjarnsholt (Copenhagen, Denmark)
WebcastSlide presentation
WebcastSlide presentation
Risk factors for progression of cystic fibrosis lung disease from childhood to adulthood
S. Stick (Perth (WA), Australia)
WebcastSlide presentation
WebcastSlide presentation
Novel therapeutics for cystic fibrosis
Marcus Mall (Berlin, Germany)

Thursday, 9 January 2020
WebcastPDF journal article, handout or slides
WebcastPDF journal article, handout or slides
Bacterial dysbiosis in pediatric lung diseases such as asthma and CF
A. Dalpke (Dresden, Germany)
WebcastSlide presentation
WebcastSlide presentation
The need for lung transplantation in cystic fibrosis (CF) in the era of new treatment
C. Benden (Zurich, Switzerland)
WebcastSlide presentation
WebcastSlide presentation
Using integrated omics to assess the effects of rhinovirus infection in children with Cystic Fibrosis (CF).
P. Agudelo-Romero (Perth (WA), Australia), K. Martinovich (Perth (WA), Australia), J. Chandler (Atlanta (GA), United States of America), K. Ling (Perth (WA), Australia), E. Sutanto (Perth (WA), Australia), D. Jones (Atlanta (GA), United States of America), R. Tirouvanzium (Atlanta (GA), United States of America), S. Stick (Perth (WA), Australia), L. Garratt (Perth (WA), Australia), A. Kicic (Perth (WA), Australia), W. Erp (Perth (WA), Australia), A. Cf (Perth (WA), Australia)
Congress or journal article abstractWebcastE-poster
Congress or journal article abstractWebcastE-poster
Multivolume magnetic resonance imaging (1H-MRI) for the longitudinal assessment of cystic fibrosis (CF) lung disease: comparison with spirometry
F. Pennati (Milano (MI), Italy), I. Borzani (Milano (MI), Italy), L. Moroni (Milano (MI), Italy), M. Russo (Milano (MI), Italy), A. Aliverti (Milano (MI), Italy), C. Colombo (Milano (MI), Italy)
Congress or journal article abstractWebcastSlide presentationE-poster
Congress or journal article abstractWebcastSlide presentationE-poster