Patient and public involvement (PPI) to inform a survey on airways clearance treatments in bronchiectasis.
K. O'Neill (Belfast, United Kingdom), R. Mcgrath (Belfast, United Kingdom), B. O’Neill (Jordanstown, United Kingdom), J. Boyd (Sheffield, United Kingdom), C. Gilfillan (Belfast, United Kingdom), J. Chalmers (Dundee, United Kingdom), J. Bradley (Belfast, United Kingdom)
Source: Virtual Congress 2020 – New insights into respiratory physiotherapy
Session: New insights into respiratory physiotherapy
Session type: E-poster session
Number: 1264
Disease area: Airway diseases, Paediatric lung diseases
Abstract Introduction: Airways Clearance Treatments (ACT) in respiratory physiotherapy are highlighted as a key research priority by both experts and people with bronchiectasis (1). Current practice is unclear. We are conducting a survey to determine current practice in Northern Ireland (NI). Patient and public involvement (PPI) is key to ensure survey content, format and delivery are optimised. Methods: Two focus groups (5 patients, 3 physiotherapists treating people with bronchiectasis) and 5 semi-structured interviews (2 patients, 5 physiotherapists) were conducted using a schedule of questions pre-prepared by the project team and a patient advisory group member. Audio recordings were transcribed and grouped into themes using template analysis (2). Themes were used to generate a list of updates to the draft patient and physiotherapist surveys. Results: The following themes emerged: Patient survey: access to and outcomes for physiotherapy, ACT dose, ACT choice, barriers to ACT, support for ACT and feasibility of an online survey. Physiotherapy survey: factors influencing choice of ACT, initial ACT prescription, follow-up for ACT, barriers to ACT delivery, current ACT service delivery, concomitant therapies, outcomes from ACT, ACT dose, technology and survey engagement. Substantial updates were made to the patient (n=24 updates) and physiotherapy survey (n=52 updates), including amendments to current questions, addition of new questions and changes to survey delivery plan. Conclusion: PPI Patient and public involvement and engagement is essential to ensure survey content, format and delivery are optimised.
1. Aliberti et al Eur Respir J. 2016;48(3):632-647.
2. King et al Sage; 2012.
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K. O'Neill (Belfast, United Kingdom), R. Mcgrath (Belfast, United Kingdom), B. O’Neill (Jordanstown, United Kingdom), J. Boyd (Sheffield, United Kingdom), C. Gilfillan (Belfast, United Kingdom), J. Chalmers (Dundee, United Kingdom), J. Bradley (Belfast, United Kingdom). Patient and public involvement (PPI) to inform a survey on airways clearance treatments in bronchiectasis.. 1264
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