Development of pediatric cross-cultural patient-reported outcome measures: QOL-PCD

S. Dell, M. Leigh, T. Ferkol, M. Knowles, A. Alpern, L. Behan, C. Hogg, A. DunnGalvin, J. Lucas, A. Quittner (Toronto, Canada; Chapel Hill, St Louis, Coral Gables, United States Of America; Southampton, London, United Kingdom; Cork, Ireland)

Source: International Congress 2014 – Paediatric epidemiology: new insights into primary ciliary dyskinesia, prematurity and bronchiolitis
Disease area: Paediatric lung diseases

Congress or journal article abstract

Rating: 0
You must login to grade this presentation.

Share or cite this content

Citations should be made in the following way:
S. Dell, M. Leigh, T. Ferkol, M. Knowles, A. Alpern, L. Behan, C. Hogg, A. DunnGalvin, J. Lucas, A. Quittner (Toronto, Canada; Chapel Hill, St Louis, Coral Gables, United States Of America; Southampton, London, United Kingdom; Cork, Ireland). Development of pediatric cross-cultural patient-reported outcome measures: QOL-PCD. Eur Respir J 2014; 44: Suppl. 58, 1248

You must login to share this Presentation/Article on Twitter, Facebook, LinkedIn or by email.

Member's Comments

No comment yet.
You must Login to comment this presentation.


Related content which might interest you:
Development of the QOL-PCD: A cross-cultural patient-reported outcome measure for adults with primary ciliary dyskinesia
Source: International Congress 2014 – Interventions and other therapeutic approaches in respiratory infections
Year: 2014

REG endpoint validation: Association between database and patient-reported exacerbations
Source: International Congress 2014 – Respiratory symptoms in primary care populations
Year: 2014

Differences in symptoms between patients with and without PCD: Data from a PCD diagnostic referral centre
Source: International Congress 2014 – Paediatric epidemiology: new insights into primary ciliary dyskinesia, prematurity and bronchiolitis
Year: 2014

The Italian registry for severe/uncontrolled asthma
Source: International Congress 2016 – Asthma: treatment, disease control, and quality of life
Year: 2016

A multidisciplinary clinic for children with severe asthma: Clinical outcomes and healthcare utilization
Source: International Congress 2014 – More paediatric asthma
Year: 2014

Increases in the occurrence of asthma and respiratory symptoms in Polish children over the last 21 years
Source: International Congress 2014 – Paediatric epidemiology: wheeze, asthma and other respiratory diseases
Year: 2014


Creating a large multinational dataset of patients with primary ciliary dyskinesia (PCD)
Source: International Congress 2014 – Paediatric epidemiology: new insights into primary ciliary dyskinesia, prematurity and bronchiolitis
Year: 2014


Risk factors for uncontrolled asthma in a Swedish asthma population – Results from the PRAXIS-study
Source: International Congress 2014 – Management of asthma and other respiratory diseases in primary care
Year: 2014

Menopause is related to asthma: A Nordic cross-sectional survey
Source: International Congress 2014 – Asthma: still a heterogeneous condition!
Year: 2014


Guideline Adherence and Identifying Cost Effective Medication
Source: International Congress 2014 – Paediatric asthma: pharmacological and non-pharmacological management
Year: 2014

Predictors of BTS Step 3 paediatric asthma prescribing
Source: International Congress 2014 – Paediatric asthma: pharmacological and non-pharmacological management
Year: 2014

Assessment of asthma morbidity by US patients, specialists, Asthma Control Test™, and Asthma Impairment and Risk Questionnaire™
Source: Virtual Congress 2020 – Clinical and functional evaluation of asthmatics
Year: 2020


Measurement properties of RDAI and RACS and their suitability as outcome measures in bronchiolitis trials
Source: International Congress 2014 – Paediatric epidemiology: new insights into primary ciliary dyskinesia, prematurity and bronchiolitis
Year: 2014

Asthma therapeutic management in the elderly: Pharmacoepidemiological approach in the E3N cohort
Source: International Congress 2015 – Treatment and control of respiratory disease
Year: 2015

Digital Therapy in the treatment of asthma and COPD - Epidemiology of development and use of an emerging health technology in Respiratory Medicine
Source: International Congress 2019 – M-health/e-health II
Year: 2019

Growth in patients with primary ciliary dyskinesia (PCD): A multinational study
Source: International Congress 2014 – Paediatric epidemiology: new insights into primary ciliary dyskinesia, prematurity and bronchiolitis
Year: 2014


Improving paediatric asthma management through improved communication
Source: International Congress 2014 – Paediatric asthma: pharmacological and non-pharmacological management
Year: 2014

Puberty and asthma in a cohort of Swedish children
Source: International Congress 2014 – Paediatric epidemiology: wheeze, asthma and other respiratory diseases
Year: 2014

Detection of asthma patient-reported exacerbations during follow-up in the ASTROLAB cohort
Source: International Congress 2015 – Asthma and COPD: overlap and exacerbations
Year: 2015


Differences in disease severity between combination treatments in a Swedish population
Source: International Congress 2014 – Prevalence of COPD and mortality from COPD
Year: 2014