Source: Annual Congress 2011 - Exacerbations and severe chronic respiratory disease: oxygen, rehabilitation, admission to hospital and palliative care
Disease area: Airway diseases

Abstract

To assess the current situation and the perspective of respiratory care of outpatients with chronic respiratory diseases, the nationwide survey was conducted. In the patient survey, the questionnaires were sent to 3090 patients (JFPORD) and the return rate was 27%. Of the 338 COPD patients, 73% were receiving LTOT (LTOT and HMV 24%). With regard to the pharmacological treatment, Tiotropium, LABAs, ICSs, mucolytic agents, macrolides were prescribed in 57%, 72%, 50%, 51%, and 20%, respectively. Those receiving pulmonary rehabilitation (PR) and nutritional guidance accounted for 63% and 42%, which was 60% and 28% in the 2005 White Paper, respectively. Among the LTOT/HMV group, 31% had been hospitalized more than once in the past year due to exacerbation. Concerning wishes for medical staffs, the most common reply was they wanted to be taught more about the skills for self-management, which were 78% and 83% in 2010 and 2005, respectively. The most common concrete examples of this concerned PR. The three most common demands concerning LTOT were a wish for subsidy of electricity cost of the concentrator (45%), for distribution or rental of oximeters (41%), and better explanation of the response of the LTOT/HMV providers in the time of natural disaster (35%). It is suggested that there are demands regarding the needs of patients for more information about the self-management skills and an increase in opportunity to receive PR. To achieve anxiety-free respiratory care for LTOT/HMV, the reimbursement policy for the providers has to be made, especially for handling of patients in the time of natural disaster.

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J. Ueki, M. Mishima, K. Tatsumi, K. Takahashi, H. Ishihara, H. Kurosawa, K. Fujimoto, M. Koyama, K. Toyama (Urayasu, Kyoto, Tokyo, Japan). The current situation and the perspective of respiratory care in Japanese COPD patients revealed by Japanese White Paper on home respiratory care 2010 – COPD subgroup analysis. Eur Respir J 2011; 38: Suppl. 55, 1249

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