Facing the challenges of self-management in COPD: how do people adapt to the disease, its symptoms and resulting limitations?
C. Gilbert, M. Jackson, A. Hareendran, A. Johnson, S. Newman (London, Sandwich, Whitstable, Canterbury, United Kingdom)
Source: Annual Congress 2005 - Health status in COPD and asthma: its relevance in pulmonary rehabilitation
Disease area: Airway diseases
Abstract Physiological measures of disease status often have only weak/moderate correlations with patient reported health status in COPD. This research explores how individual‘s experience and adapt to COPD in an attempt to explain some of the variability in the impact of this condition. 25 in-depth, one-to-one, semi-structured interviews were conducted with COPD patients - 17 male; mean age 67.76 years (range 49 to 78); mean FEV1% 38.72 (range 16 to 73). Key themes were identified through systematic qualitative framework analysis of transcripts. Results showed that individuals employ a variety of behavioural, social and psychological resources to adapt to the challenges faced through COPD. These responses were both adaptive and maladaptive in terms of how people manage their disease. The overall impact of COPD on people‘s lives appeared to be more strongly related to these personal responses to the condition than to lung function. Identifying adaptive/maladaptive responses to COPD and exploring factors influencing individual adaptation to the condition can help to explain the lack of strength in the relationship between lung function and health status. Understanding personal responses could be useful to tailor effective self-management interventions.
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C. Gilbert, M. Jackson, A. Hareendran, A. Johnson, S. Newman (London, Sandwich, Whitstable, Canterbury, United Kingdom). Facing the challenges of self-management in COPD: how do people adapt to the disease, its symptoms and resulting limitations?. Eur Respir J 2005; 26: Suppl. 49, 2050
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