ERS International Congress, Paris 2018

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Rare lung diseases

Symposium
Chairs: G. Brusselle (Ghent, Belgium), M. Humbert (Paris, France)
Aims: The ERN-LUNG and the ERS have joined forces to fight rare diseases of the respiratory system. The aim of this joint session is to increase awareness of rare diseases of the respiratory system and to demonstrate the support that the ERN-LUNG can provide in rare lung diseases with respect to clinical care and research, cross-border advice to patients and care team members, cross-border consultations and cross-border referral.

Lung transplantation in rare lung diseases: the problem of chronic lung allograft dysfunction (CLAD) T. Welte (Hannover, Germany)
What do patients expect from ERN-LUNG? G. Meszaros (Budapest, Hungary)
From childhood to adulthood: growing up with a rare lung disease such as cystic fibrosis C. van der Ent (Utrecht, Netherlands)
Rare diseases registries such as the Rare Lung Disease Registry Data Warehouse H. Storf (Frankfurt, Germany)