The German cystic fibrosis quality assurance project: clinical features in children and adults

Wiedemann B., Steinkamp G., Sens B., Stern M.

Source: Eur Respir J 2001; 17: 1187-1194
Journal Issue: June
Disease area: Paediatric lung diseases

Congress or journal article abstractPDF journal article, handout or slidesFull text journal article

Rating: 0
You must login to grade this presentation.

Share or cite this content

Citations should be made in the following way:
Wiedemann B., Steinkamp G., Sens B., Stern M.. The German cystic fibrosis quality assurance project: clinical features in children and adults. Eur Respir J 2001; 17: 1187-1194

You must login to share this Presentation/Article on Twitter, Facebook, LinkedIn or by email.

Member's Comments

No comment yet.
You must Login to comment this presentation.


Related content which might interest you:
Assessment of NuvoAir platform use on clinical outcomes in adults with cystic fibrosis: a first Italian experience
Source: Virtual Congress 2021 – Cystic fibrosis
Year: 2021


From registry to quality management: the German Cystic Fibrosis Quality Assessment project 1995 2006
Source: Eur Respir J 2008; 31: 29-35
Year: 2008



A new paradigm for the management of children with cystic fibrosis at home: experiences from a Dutch cystic fibrosis clinic
Source: Virtual Congress 2021 – New technologies for the management of children with respiratory diseases
Year: 2021


Association of clinical variables in children with cystic fibrosis and health-related quality of life
Source: Eur Respir J 2002; 20: Suppl. 38, 342s
Year: 2002

Do causes influence clinical, functional and quality of life aspects on patients with bronchiectasis not associated with cystic fibrosis?
Source: International Congress 2019 – Chronic cough, a1-antitrypsin deficiency and other conditions
Year: 2019


Case study in cystic fibrosis: the US CF Foundation research and clinical development programmes
Source: Research Seminar 2014 - Breaking down barriers to lung health: a better environment for better medicines
Year: 2014


Quality of life and health utility in patients with cystic fibrosis
Source: Annual Congress 2010 - Cystic fibrosis: clinical and laboratory studies
Year: 2010

Age at diagnosis and follow up, standards of care in cystic fibrosis patients: impact on outcomes
Source: Eur Respir J 2007; 30: Suppl. 51, 386s
Year: 2007

Nurse-provided education improves adherence and quality of life in adult patients with cystic fibrosis
Source: Virtual Congress 2020 – Challenges and updates in nursing care around the world
Year: 2020


Comparative study of three quality of life instruments in adolescent and adults with cystic fibrosis
Source: Annual Congress 2012 - Cystic fibrosis (adults and children): new aspects of risk factors, treatments and diagnosis
Year: 2012


Home care and benefit in days of hospitalization, cost and quality of life for children with cystic fibrosis
Source: International Congress 2016 – Kaleidoscope of respiratory nursing
Year: 2016


Patient centred research: a model for involving cystic fibrosis (CF) patients in research planning
Source: International Congress 2019 – Treatments, adherence and psychosocial aspects of cystic fibrosis
Year: 2019

Optimising treatment policies and improvement of care: impact on outcome in cystic fibrosis patients
Source: Eur Respir J 2004; 24: Suppl. 48, 617s
Year: 2004

Hospital admissions are linked to a poor health related quality of life in patients with non cystic fibrosis bronchiectasis
Source: Annual Congress 2007 - Pulmonary infections in the immunocompetent and immunocompromised host
Year: 2007


Quality of life of paediatric patients with cystic fibrosis and their caregivers
Source: Annual Congress 2011 - Cystic fibrosis: new basic, clinical and bacteriological knowledge
Year: 2011


Management of patients with idiopathic pulmonary fibrosis in clinical practice: the INSIGHTS-IPF registry
Source: Eur Respir J 2015; 46: 186-196
Year: 2015



Using registries to improve cystic fibrosis care
Source: Eur Respir Monogr 2014; 64: 262-271
Year: 2014


Public awareness on cystic fibrosis: results from a national pragmatic survey
Source: Eur Respir J 2015; 46: 264-267
Year: 2015