What patients with pulmonary fibrosis and their partners think: a live, educative survey in the Netherlands and Germany

Mirjam J.G. van Manen, Michael Kreuter, Bernt van den Blink, Ute Oltmanns, Karin Palmowski, Eva Brunnemer, Simone Hummler, Nelleke C. Tak, Leon van den Toorn, Jelle Miedema, Henk C. Hoogsteden, Marlies S. Wijsenbeek

Source: ERJ Open Res, 3 (1) 00065-2016; 10.1183/23120541.00065-2016
Journal Issue: January

Congress or journal article abstractFull text journal articlePDF journal article, handout or slides

Rating: 0
You must login to grade this presentation.

Share or cite this content

Citations should be made in the following way:
Mirjam J.G. van Manen, Michael Kreuter, Bernt van den Blink, Ute Oltmanns, Karin Palmowski, Eva Brunnemer, Simone Hummler, Nelleke C. Tak, Leon van den Toorn, Jelle Miedema, Henk C. Hoogsteden, Marlies S. Wijsenbeek. What patients with pulmonary fibrosis and their partners think: a live, educative survey in the Netherlands and Germany. ERJ Open Res, 3 (1) 00065-2016; 10.1183/23120541.00065-2016

You must login to share this Presentation/Article on Twitter, Facebook, LinkedIn or by email.

Member's Comments

No comment yet.
You must Login to comment this presentation.


Related content which might interest you:
A survey of the needs and experiences of pulmonary hypertension patients in the UK
Source: Eur Respir J 2002; 20: Suppl. 38, 26s
Year: 2002

What should Pulmonary Rehabilitation (PR) look like for adults living with post-TB lung disease (PTBLD) in Kyrgyzstan? A qualitative study
Source: Virtual Congress 2021 – Pulmonary rehabilitation in clinical conditions
Year: 2021


Under-diagnosis, under-treatment and under-counseling of patients of COPD in rural & semi-urban Indian population: If you are not talking to your patient, you are killing him!
Source: International Congress 2015 – Respiratory disease management in primary care
Year: 2015


eHealth in pulmonary fibrosis: an international survey among healthcare providers and patients
Source: Virtual Congress 2020 – News on diagnosis and therapy of idiopathic pulmonary fibrosis
Year: 2020


Perception of the caregivers of patients with idiopathic pulmonary fibrosis: results of the French national survey, RESPIR
Source: International Congress 2019 – The changing face of rare diffuse parenchymal lung diseases: recent advances in pathogenesis, clinical manifestations and treatment
Year: 2019


What public know about chronic obstructive pulmonary disease (COPD) in Turkey? Results of a questionnaire survey done on world COPD day 2003
Source: Eur Respir J 2004; 24: Suppl. 48, 514s
Year: 2004

Assessment of factors influencing adherence to asthma treatment among 12-17 year olds: A multi-national survey in France, Germany, Spain and United Kingdom
Source: International Congress 2016 – Asthma management in primary care
Year: 2016

A survey of specialist opinions on biomarker use in severe asthma in Australia: scepticism but hope?
Source: ERJ Open Res, 6 (2) 00113-2020; 10.1183/23120541.00113-2020
Year: 2020



The national program of pulmonary hypertension in Romania, past, present and future
Source: Annual Congress 2010 - Pulmonary circulation II
Year: 2010

Patterns in patient experience of COPD exacerbations in the UK, Denmark and Netherlands - a qualitative study
Source: Eur Respir J 2003; 22: Suppl. 45, 67s
Year: 2003

Global asthma physician & patient (GAPP) survey: lack of communication between adult patients & physicians in Europe may influence compliance
Source: Annual Congress 2006 - New developments in the treatment and management of asthma
Year: 2006


Idiopathic pulmonary fibrosis in Finland and Sweden: differences in the performance of two similar health care systems
Source: International Congress 2017 – ILDs: clinical aspects
Year: 2017


Challenges facing parents/caregivers of children with interstitial lung disease (chILD): international survey
Source: International Congress 2018 – Insights in primary ciliary dyskinesia, asthma and lung function testing
Year: 2018

The opinions of people living with chronic respiratory disease (CRD) and healthcare professionals (HCPs) about Pulmonary Rehabilitation (PR) in Kyrgyzstan.
Source: Virtual Congress 2020 – Pulmonary rehabilitation across the globe
Year: 2020


Gaps in care of patients living with pulmonary fibrosis: a joint patient and expert statement on the results of a Europe-wide survey
Source: ERJ Open Res, 5 (4) 00124-2019; 10.1183/23120541.00124-2019
Year: 2019



Bristol COPD knowledge questionnaire (BCKQ): experience with 122 patients attending an out patient pulmonary rehabilitation program
Source: Annual Congress 2007 - Predicting factors of patients undergoing rehabilitation
Year: 2007



TB at homeless in Iasi county, Romania; 8 year case review
Source: Annual Congress 2007 - Clinical epidemiology of tuberculosis
Year: 2007


Transitions at the end of life in severe COPD or advanced cancer: a qualitative study of patients, family members, physicians and nurses
Source: Annual Congress 2007 - Nurses' involvement in the follow-up of patients with COPD and lung cancer
Year: 2007



Healthcare professionals (HCPs) attitudes towards referring patients to pulmonary rehabilitation (PR); a cross sectional exploratory survey
Source: International Congress 2017 – Best abstracts in pulmonary rehabilitation in patients with chronic lung diseases
Year: 2017


Pulmonary hypertension: The experience of a large UK district general hospital
Source: Annual Congress 2012 - Pulmonary circulation: clinical PAH, registries and treatments
Year: 2012