Patient and partner empowerment programme for idiopathic pulmonary fibrosis

Mirjam J.G. van Manen, Adriaan van 't Spijker, Nelleke C. Tak, Carla T. Baars, Sandra M. Jongenotter, Liesbeth R. van Roon, Jitske Kraan, Henk C. Hoogsteden, Marlies S. Wijsenbeek

Source: Eur Respir J , 49 (4)  1601596; DOI: 10.1183/13993003.01596-2016
Journal Issue: April
Disease area: Interstitial lung diseases

Congress or journal article abstractFull text journal articlePDF journal article, handout or slides

Rating: 0
You must login to grade this presentation.

Share or cite this content

Citations should be made in the following way:
Mirjam J.G. van Manen, Adriaan van 't Spijker, Nelleke C. Tak, Carla T. Baars, Sandra M. Jongenotter, Liesbeth R. van Roon, Jitske Kraan, Henk C. Hoogsteden, Marlies S. Wijsenbeek. Patient and partner empowerment programme for idiopathic pulmonary fibrosis. Eur Respir J , 49 (4)  1601596; DOI: 10.1183/13993003.01596-2016

You must login to share this Presentation/Article on Twitter, Facebook, LinkedIn or by email.

Member's Comments

No comment yet.
You must Login to comment this presentation.


Related content which might interest you:
Clinical burden of idiopathic pulmonary fibrosis (IPF): physician and patient perception
Source: Virtual Congress 2020 – Clinical aspects of idiopathic pulmonary fibrosis
Year: 2020


The development of a measure to better understand patient experiences with pirfenidone and nintedanib for the treatment of idiopathic pulmonary fibrosis (IPF)
Source: International Congress 2016 – IPF: from pathogenesis to treatment I
Year: 2016

Perceptions, experiences and information needs of patients with idiopathic pulmonary fibrosis (IPF): A qualitative study
Source: Annual Congress 2012 - Idiopathic pulmonary fibrosis
Year: 2012


Development of a national patient charter for idiopathic pulmonary fibrosis
Source: International Congress 2016 – IPF clinical
Year: 2016


An educational initiative to improve the team-based care of patients with idiopathic pulmonary fibrosis
Source: ERJ Open Res, 4 (1) 00093-2017; 10.1183/23120541.00093-2017
Year: 2018



Changing the idiopathic pulmonary fibrosis treatment approach and improving patient outcomes
Source: Eur Respir Rev 2012; 21: 161-167
Year: 2012



Patient journey to diagnosis of idiopathic pulmonary fibrosis (IPF) in the US
Source: International Congress 2017 – ILDs: clinical aspects
Year: 2017


Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models
Source: Eur Respir Rev 2014; 23:231-238
Year: 2014



A supportive care decision aid tool for idiopathic pulmonary fibrosis
Source: International Congress 2016 – IPF: from pathogenesis to treatment II
Year: 2016


The physical and psychological needs of patients with idiopathic pulmonary fibrosis
Source: International Congress 2016 – ILD: from the bench to the bedside
Year: 2016


IPF Care, a support program for patients with idiopathic pulmonary fibrosis in the UK
Source: International Congress 2015 – Latest insights into chronic care
Year: 2015


The lived experience of idiopatic pulmonary fibrosis: A qualitative study
Source: International Congress 2016 – Respiratory nursing research: opening new perspectives on patient experiences
Year: 2016


Discrepancy between patient expectations and experiences with anti-fibrotic drugs in idiopathic pulmonary fibrosis
Source: International Congress 2017 – Idiopathic pulmonary fibrosis: from the bench to the bedside
Year: 2017

Patients’ expectations and quality of life before introduction of pirfenidone used in idiopathic pulmonary fibrosis.
Source: International Congress 2018 – Management of idiopathic interstitial pneumonias: established and new treatments
Year: 2018


Patient motivation during pulmonary rehabilitation
Source: International Congress 2019 – Effects of pulmonary rehabilitation other than improving exercise capacity
Year: 2019


Integrating early palliative care for patients with idiopathic pulmonary fibrosis and their caregivers
Source: Virtual Congress 2020 – Fear and anxiety, psychological wellbeing and prevention of psychological distress in chronic lung diseases
Year: 2020


European idiopathic pulmonary fibrosis Patient Charter: a missed opportunity
Source: Eur Respir J 2016; 48: 282-283
Year: 2016


European idiopathic pulmonary fibrosis Patient Charter: a missed opportunity
Source: Eur Respir J 2016; 48: 283-284
Year: 2016


Idiopathic pulmonary fibrosis (IPF): the patient journey
Source: Virtual Congress 2020 – Clinical aspects of idiopathic pulmonary fibrosis
Year: 2020


Do physicians in primary health care recognize pulmonary fibrosis?
Source: International Congress 2015 – IPF: clinical aspects
Year: 2015