A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCD

Lucas Jane S., Behan Laura, Dunn Galvin Audrey, Alpern Adrianne, Morris Anjana M., Carroll Mary P., Knowles Michael R., Leigh Margaret W., Quittner Alexandra L.

Source: Eur Respir J 2015; 46: 375-383
Journal Issue: August
Disease area: Airway diseases, Paediatric lung diseases

Congress or journal article abstractFull text journal articlePDF journal article, handout or slides

Rating: 0
You must login to grade this presentation.

Share or cite this content

Citations should be made in the following way:
Lucas Jane S., Behan Laura, Dunn Galvin Audrey, Alpern Adrianne, Morris Anjana M., Carroll Mary P., Knowles Michael R., Leigh Margaret W., Quittner Alexandra L.. A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCD. Eur Respir J 2015; 46: 375-383

You must login to share this Presentation/Article on Twitter, Facebook, LinkedIn or by email.

Member's Comments

No comment yet.
You must Login to comment this presentation.


Related content which might interest you:
Evaluation of  quality of life in patients with primary ciliary dyskinesia
Source: International Congress 2018 – Insights in primary ciliary dyskinesia, asthma and lung function testing
Year: 2018

The development of translated, cross-cultural patient-reported outcome measures for patients with primary ciliary dyskinesia
Source: International Congress 2016 – Monitoring comorbidities
Year: 2016


Evaluation of sleep quality in primary ciliary dyskinesia patients
Source: Annual Congress 2008 - Diagnostic paediatric lung function: technical and clinical aspects
Year: 2008


Factors affecting quality of life in children, adolescents and adults with primary ciliary dyskinesia
Source: Annual Congress 2012 - Quality of life and clinical parametres in monitoring airway diseases
Year: 2012

Quality of life and exercise capacity in patients with primary ciliary dyskinesia
Source: International Congress 2018 – Chronic respiratory disease: effects of rehabilitation interventions in patients
Year: 2018

Development of the QOL-PCD: A cross-cultural patient-reported outcome measure for adults with primary ciliary dyskinesia
Source: International Congress 2014 – Interventions and other therapeutic approaches in respiratory infections
Year: 2014

Quality of life in patients with primary ciliary dyskinesia: a systematic review
Source: International Congress 2017 – Primary ciliary dyskinesia and air pollution
Year: 2017


LATE-BREAKING ABSTRACT: Validation of a new health-related quality of life instrument specific to adults with primary ciliary dyskinesia: QOL-PCD
Source: International Congress 2016 – Latest insights into functional capacity and muscle weakness in chronic lung diseases
Year: 2016


Health-related quality of life and unmet needs in patients with primary ciliary dyskinesia
Source: Eur Respir J 2010; 35: 787-794
Year: 2010



Characteristics and outcomes of adults with primary ciliary dyskinesia (PCD): an EMBARC/BEAT-PCD analysis
Source: Virtual Congress 2021 – Bronchiectasis
Year: 2021


Sleep study in primary ciliary dyskinesia patients
Source: Annual Congress 2010 - Adenotonsillectomy and paediatric sleep medicine
Year: 2010


French translation and linguistic validation of the QOL-PCD, a quality of life questionnaire for patients with primary ciliary dyskinesia
Source: International Congress 2016 – Monitoring comorbidities
Year: 2016


Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD
Source: ERJ Open Res, 6 (1) 00237-2019; 10.1183/23120541.00237-2019
Year: 2020



Clinical index to evaluate the risk of primary ciliary dyskinesia in children
Source: Annual Congress 2012 - Paediatric respiratory epidemiology: something for everyone!
Year: 2012


Risk of the developmental delay and behavior problems in preschool-aged primary ciliary dyskinesia patients.
Source: International Congress 2019 – New insights into childhood infections: from viral bronchiolitis to bronchiolitis obliterans
Year: 2019

Anxiety and depression in Dutch patients with Primary Ciliary Dyskinesia:Associations with health-related quality of life
Source: Virtual Congress 2020 – Challenges and updates in nursing care around the world
Year: 2020


Assessment of mental health status in primary ciliary dyskinesia and cystic fibrosis patients and their parents
Source: International Congress 2018 – Cystic fibrosis in adults: current research
Year: 2018


Subjective and objective measures of cough frequency and cough-specific quality of life in asthma patients
Source: Annual Congress 2007 - Traditional and novel approaches to assess and achieve asthma control
Year: 2007


The impact of primary ciliary dyskinesia on health related quality of life in children, adolescents and parents
Source: Annual Congress 2013 –Paediatric respiratory epidemiology: new understandings of lung function, disorders of prematurity and chronic airway diseases
Year: 2013


Does nasal irrigation (NI) improve outcomes in children with primary ciliary dyskinesia (PCD)?: a scoping review
Source: Virtual Congress 2021 – Primary ciliary dyskinesia and tracheostomy
Year: 2021