e-learning
resources
ERS Research Seminars
2013
Login
Search all ERS
e-learning
resources
Disease Areas
Airways Diseases
Interstitial Lung Diseases
Respiratory Critical Care
Respiratory Infections
Paediatric Respiratory Diseases
Pulmonary Vascular Diseases
Sleep and Breathing Disorders
Thoracic Oncology
Events
International Congress
Courses
Webinars
Conferences
Research Seminars
Journal Clubs
Publications
Breathe
Monograph
ERJ
ERJ Open Research
ERR
European Lung White Book
Handbook Series
Guidelines
All ERS guidelines
e-learning
CME Online
Case reports
Short Videos
SpirXpert
Procedure Videos
CME tests
Reference Database of Respiratory Sounds
Radiology Image Challenge
Brief tobacco interventions
EU Projects
VALUE-Dx
ERN-LUNG
ECRAID
UNITE4TB
Disease Areas
Events
Publications
Guidelines
e-learning
EU Projects
Login
Search
Living with a rare disease: LAM patient’s view
E. Reilly (Dublin, Ireland)
Source:
Research Seminar 2013 - ERS Presidential Summit on Research gaps, patient needs and innovative solutions: a forward look on lung health research
Number:
19
Rating:
You must
login
to grade this presentation.
Share or cite this content
Citations should be made in the following way:
E. Reilly (Dublin, Ireland). Living with a rare disease: LAM patient’s view. Research Seminar 2013 - ERS Presidential Summit on Research gaps, patient needs and innovative solutions: a forward look on lung health research
You must
login
to share this Presentation/Article on Twitter, Facebook, LinkedIn or by email.
Member's Comments
No comment yet.
You must
Login
to comment this presentation.
Related content which might interest you:
Panel discussion on Basic translational and clinical research – building a career in paediatric pulmonology- experiences from clinicians in lower middle income countries
ERS/EAACI statement on severe exacerbations in asthma in adults: facts, priorities and key research questions
Definition and history of sarcoidosis
Related content which might interest you:
Living with a rare disease: CF patient’s view
Source: Research Seminar 2013 - ERS Presidential Summit on Research gaps, patient needs and innovative solutions: a forward look on lung health research
Year: 2013
The changing face of a rare disease: lymphangioleiomyomatosis
Source: Eur Respir J 2015; 46: 1471-1485
Year: 2015
Infections in children: is there an underlying rare disease?
Source: International Congress 2019 – Part I: Prevention and management of respiratory infections in primary care.
Year: 2019
Living with a rare disease: ELF Patient Ambassador Programme
Source: Research Seminar 2013 - ERS Presidential Summit on Research gaps, patient needs and innovative solutions: a forward look on lung health research
Year: 2013
Advanced chronic respiratory disease: the patient’s experience
Source: School Course 13
Year: 2013
A rare manifestation of Behçet disease with pulmonary nodules: a case report
Source: Annual Congress 2007 - Orphan diseases
Year: 2007
Pulmonary hydatid disease: a unique treatment for an uncommon disease
Source: Eur Respir J 2007; 30: Suppl. 51, 392s
Year: 2007
Patient view: Acute COVID-19 experiences
Source: ERS Course 2021 - COVID-19: State of the art
Year: 2021
Castleman disease variant of atypical POEMS syndrome: A case presentatIon
Source: International Congress 2014 – Clinical management of interstitial lung diseases and vasculitis
Year: 2014
Sarcoidosis and tuberculosis: A rare combination?
Source: Annual Congress 2012 - Diffuse parenchymal lung disease II
Year: 2012
Kartagener syndrome: A quick glance through a case series misdiagnosed as asthma
Source: International Congress 2016 – Mixed-up imaging of various chest diseases
Year: 2016
Living with COPD in Canada: patient self-assessment and objective measures of disease impact
Source: Annual Congress 2008 - COPD in the elderly - quality of life and scores in COPD
Year: 2008
Rosai-Dorfman disease: Presentation of a clinical case
Source: Annual Congress 2012 - The good clinical practice: useful case report
Year: 2012
Non Specific Interstitial Pneumonia and features of connective tissue disease:what are the consequences of a different point of view?
Source: International Congress 2018 – CTD-ILD and hypersensitivity pneumonitis: mechanistic insights and prognostic markers
Year: 2018
Asthma-COPD overlap syndrome (ACOS) versus ²pure² COPD: A distinct phenotype?
Source: International Congress 2016 – Best abstracts in asthma and COPD
Year: 2016
Respiratory failure in COVID-19: a patient's perspective and clinical cases
Source: Eur Respir Monogr 2021; 94: 1-13
Year: 2021
Tuberculosis patients: what do they know about their disease
Source: Annual Congress 2003 - Clinical aspects of tuberculosis
Year: 2003
Pleuroparenchymal fibroelastosis from a consecutive database: a rare disease entity?
Source: Eur Respir J 2015; 45: 1183-1186
Year: 2015
Hughes-Stovin syndrome: A case report
Source: International Congress 2015 – Pulmonary circulation: pulmonary embolism and chronic thromboembolic pulmonary hypertension
Year: 2015
Primary ciliary dyskinesia: Diagnostic and phenotypic features in an Italian population
Source: International Congress 2015 – Highlights in paediatric epidemiology: air pollution, asthma and primary ciliary dyskinesia
Year: 2015
We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. By clicking "Accept", you consent to the use of the cookies.
Accept