Rare lung diseases 2021
Symposium Chairs: T. Blum (Berlin, Germany), M. Wijsenbeek (Rotterdam, Netherlands)
Aims: To describe aspects of rare diseases of the respiratory system that all members of respiratory care teams should be familiar with; to describe some of the new developments in the field of rare lung diseases in order to enable them help patients find expertise and the best clinical care; to explain how to cooperate across borders in order to achieve the best possible results for all patients everywhere; to present cross-border healthcare as an optimal way of providing diagnostic and therapeutic options to all patients with ultrarare diseases; to provide an update about recent developments in rare disease management; to present tools for managing patients with rare diseases and to list who to ask for expert advice about such patients.