Physical activity for cystic fibrosis: perceptions of people with cystic fibrosis, parents and healthcare professionals Source: ERJ Open Res, 6 (3) 00294-2019; 10.1183/23120541.00294-2019 Year: 2020
Living with cystic fibrosis: challenges in treatment adherence and social emotional well-being Source: Virtual Congress 2020 – Updates in cystic fibrosis Year: 2020
Challenges of providing care to adults with cystic fibrosis Source: Eur Respir Monogr 2014; 64: 286-303 Year: 2014
A new paradigm for the management of children with cystic fibrosis at home: experiences from a Dutch cystic fibrosis clinic Source: Virtual Congress 2021 – New technologies for the management of children with respiratory diseases Year: 2021
Nurse-provided education improves adherence and quality of life in adult patients with cystic fibrosis Source: Virtual Congress 2020 – Challenges and updates in nursing care around the world Year: 2020
Full, shared and hybrid care for children and young people with cystic fibrosis Source: Annual Congress 2010 - Cystic fibrosis: lung disease infection and more Year: 2010
Lumacaftor/ivacaftor-associated health stabilisation in adults with severe cystic fibrosis Source: ERJ Open Res, 7 (1) 00203-2020; 10.1183/23120541.00203-2020 Year: 2021
Re-imagining cystic fibrosis care: next generation thinking Source: Eur Respir J, 55 (5) 1902443; 10.1183/13993003.02443-2019 Year: 2020
The treatment burden of cystic fibrosis: a day-to-day experience with treatment as someone with cystic fibrosis Source: Breathe, 17 (1) 210013; 10.1183/20734735.0013-2021 Year: 2021
Prevalence of anxiety and association with health related quality of life in adult patients with cystic fibrosis Source: Annual Congress 2010 - Cystic fibrosis: lung disease and much more Year: 2010
Using registries to improve cystic fibrosis care Source: Eur Respir Monogr 2014; 64: 262-271 Year: 2014
Do causes influence clinical, functional and quality of life aspects on patients with bronchiectasis not associated with cystic fibrosis? Source: International Congress 2019 – Chronic cough, a1-antitrypsin deficiency and other conditions Year: 2019
Impact of developing an outreach educational programme for improving on the physician's ability to make the diagnosis of cystic fibrosis Source: Eur Respir J 2001; 18: Suppl. 33, 124s Year: 2001
Quality of life and health utility in patients with cystic fibrosis Source: Annual Congress 2010 - Cystic fibrosis: clinical and laboratory studies Year: 2010
Longitudinal relationship between physical activity and lung health in patients with cystic fibrosis Source: Eur Respir J 2014; 43: 817-823 Year: 2014
Exercise capacity, quality of life and nutritional status in adults with cystic fibrosis Source: Eur Respir J 2003; 22: Suppl. 45, 230s Year: 2003
Evaluation of disease knowledge in children with cystic fibrosis and their families Source: Annual Congress 2011 - Cystic fibrosis: clinical and laboratory studies Year: 2011
Frequent outpatient exacerbations of non cystic fibrosis bronchiectasis leads to impaired health related quality of life Source: Annual Congress 2007 - Different aspects of COPD exacerbations Year: 2007