A Parent Reported Quality of Life Measure for Young Children with Primary Ciliary Dyskinesia: QOL-PCDPR
L. Behan (Southampton, United Kingdom), C. Driessens (Southampton, United Kingdom), S. Carr (London, United Kingdom), S. Dell (Vancouver, Canada), A. Harris (Southampton, United Kingdom), R. Knibb (Birmingham, United Kingdom), M. Leigh (Chapel Hill, United States of America), M. Narayanan (Leicester, United Kingdom), E. Robson (Leeds, United Kingdom), L. Schofield (Leeds, United Kingdom), J. Lucas (Southampton, United Kingdom)
Source: Virtual Congress 2021 – Patient-reported outcome measures (PROMs): easy tools in the management of chronic respiratory diseases
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L. Behan (Southampton, United Kingdom), C. Driessens (Southampton, United Kingdom), S. Carr (London, United Kingdom), S. Dell (Vancouver, Canada), A. Harris (Southampton, United Kingdom), R. Knibb (Birmingham, United Kingdom), M. Leigh (Chapel Hill, United States of America), M. Narayanan (Leicester, United Kingdom), E. Robson (Leeds, United Kingdom), L. Schofield (Leeds, United Kingdom), J. Lucas (Southampton, United Kingdom). A Parent Reported Quality of Life Measure for Young Children with Primary Ciliary Dyskinesia: QOL-PCDPR. 1592
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