A Parent Reported Quality of Life Measure for Young Children with Primary Ciliary Dyskinesia: QOL-PCDPR

L. Behan (Southampton, United Kingdom), C. Driessens (Southampton, United Kingdom), S. Carr (London, United Kingdom), S. Dell (Vancouver, Canada), A. Harris (Southampton, United Kingdom), R. Knibb (Birmingham, United Kingdom), M. Leigh (Chapel Hill, United States of America), M. Narayanan (Leicester, United Kingdom), E. Robson (Leeds, United Kingdom), L. Schofield (Leeds, United Kingdom), J. Lucas (Southampton, United Kingdom)

Source: Virtual Congress 2021 – Patient-reported outcome measures (PROMs): easy tools in the management of chronic respiratory diseases

Congress or journal article abstractWebcastSlide presentation

Rating: 0
You must login to grade this presentation.

Share or cite this content

Citations should be made in the following way:
L. Behan (Southampton, United Kingdom), C. Driessens (Southampton, United Kingdom), S. Carr (London, United Kingdom), S. Dell (Vancouver, Canada), A. Harris (Southampton, United Kingdom), R. Knibb (Birmingham, United Kingdom), M. Leigh (Chapel Hill, United States of America), M. Narayanan (Leicester, United Kingdom), E. Robson (Leeds, United Kingdom), L. Schofield (Leeds, United Kingdom), J. Lucas (Southampton, United Kingdom). A Parent Reported Quality of Life Measure for Young Children with Primary Ciliary Dyskinesia: QOL-PCDPR. 1592

You must login to share this Presentation/Article on Twitter, Facebook, LinkedIn or by email.

Member's Comments

No comment yet.
You must Login to comment this presentation.


Related content which might interest you:
High Intensity Resistance Training Improves Respiratory, Peripheral, Quality of Life and Emotional Response in Elderly with Parkinson Disease
Source: International Congress 2017 – Best abstracts in pulmonary rehabilitation in patients with chronic lung diseases
Year: 2017

Spanish version of the Quality of Life questionnaires for patients with Primary Ciliary Dyskinesia.
Source: International Congress 2017 – Primary ciliary dyskinesia and air pollution
Year: 2017

Asthma Control, Quality of Life and Emotional Feelings in a Real Life Setting - A Cross-sectional Study of Adult Asthma Patients in Japan: ACQUIRE-2
Source: International Congress 2017 – Clinical points to ponder in asthma
Year: 2017

Validation of the Pediatric Asthma Caregiver Quality of Life Questionnaire (PACQLQ) in young Argentinean children
Source: International Congress 2018 – Paediatric asthma: new insights in its prevalence, treatment and treatment failure
Year: 2018


Relation Between Respiratory Function, Tobacco Consumption, Exercise Habits, and Sleep Quality in Healthy Young Adult Men
Source: Virtual Congress 2020 – Smoking disease landscape: from inflammation to lung function and comorbidities
Year: 2020


The Association Between BODEx Index and Activities of Daily Living, Occupational Performance, Psychosocial Status and Health Related Quality of Life in Patients with COPD
Source: Virtual Congress 2020 – Aspects of pulmonary rehabilitation: part 1
Year: 2020


Health Related Quality of Life in children with Paediatric Central Airway Obstructive Disease (PCAOD) assessed by PACQLQ and TAPQOL questionnaires
Source: International Congress 2017 – Paediatric bronchology in clinical practice
Year: 2017

Prognostic Assessment In Copd Subjects: BODE Index And The Health-Related Quality Of Life
Source: International Congress 2019 – Long-term evaluation and control of airway diseases
Year: 2019

Validation of online Asthma Control Questionnaire and Asthma Quality of Life Questionnaire
Source: ERJ Open Res, 6 (1) 00289-2019; 10.1183/23120541.00289-2019
Year: 2020



Impact of Covid-19 Pneumonia on Pulmonary Function, Functional Exercise Capacity and Quality of Life
Source: Virtual Congress 2021 – Biological and functional markers of COVID-19
Year: 2021


COPD and Asthma Disease-specific Health-related Quality of Life Scales and Their Applications in Health Technology Assessment and in China: Literature Review
Source: Virtual Congress 2020 – How do different treatment strategies translate into costs
Year: 2020




Clinical and Functional State of Asthmatic Children: Impact of Overweight-Obesity and Sleep Disordered Breathing
Source: Virtual Congress 2020 – Paediatric asthma
Year: 2020


Continence Assessment in Paediatric Patients with Primary Ciliary Dyskinesia
Source: International Congress 2018 – Chronic respiratory disease : determinants of physical activity in patients
Year: 2018


The Effect Of An Active Exercise Program Combined With Chest Physiotherapy On Pain Severity,Posture, Respiratory Function And Quality Of Life In Patients With Chronic Obstructive Pulmonary Disease.
Source: International Congress 2019 – Exercise and rehabilitation in patients with acute and chronic respiratory diseases
Year: 2019

Improving Primary Ciliary Dyskinesia diagnosis using Artificial Intelligence
Source: Virtual Congress 2020 – Rare lung diseases and lung manifestations of extrapulmonary diseases
Year: 2020


Influence of Smoking, Environmental  Factors and Life Style on Lung Function in a Large German Cohort
Source: International Congress 2018 – Occupational and environmental lung diseases: inhaled air quality and health effects
Year: 2018

Effects of the COVID-19 Lockdown on Sleep Duration in Children and Adolescents: A Survey Across Different Continents
Source: Virtual Congress 2021 – Best of paediatric physiology and sleep research
Year: 2021



Late Breaking Abstract - COVID-19 Infodemic and Health-Related Quality of Life (HRQoL) in Patients with Chronic Respiratory Diseases (CRDs)
Source: Virtual Congress 2021 – Lung disease burden and management
Year: 2021


Quality of Life in Asthma Patients: A Nationwide Population-Based Study
Source: International Congress 2017 – Techniques to treat asthma
Year: 2017


The Impact of Air Pollution, Including Asian Sand Dust, on Respiratory Symptoms and Health-related Quality of Life in Outpatients With Chronic Respiratory Disease in Korea
Source: International Congress 2019 – Air pollution and the lungs
Year: 2019