M. Goutaki (Bern, Switzerland), S. Brown (Ashford (Kent), United Kingdom)
This session is built from abstracts published on the ERS Congress platform from 23 August, in an e-poster pdf format with a 3-minute audio narration. Participants and chairs of the session are invited to access all e-posters from 23 August to 4 September prior to the 1-hour live, online discussion scheduled from September 5-7. Please note that during live discussion there will be NO e-poster/abstract presentations, only discussion.
Development and first results of the BEAT-PCD international Primary Ciliary Dyskinesia gene variant database: CiliaVar
R. Mani (Paris, France), M. Gomes (London, United Kingdom), A. González (London, United Kingdom), C. Hogg (London, United Kingdom), D. Morris-Rosendahl (London, United Kingdom), B. Maitre (Paris, France), M. Fassad (London, United Kingdom), M. Goutaki (Bern, Switzerland), J. Lucas (Southampton, United Kingdom), A. Shoemark (Dundee, United Kingdom), H. Mitchison (London, United Kingdom), M. Legendre (Paris, France), S. Crowley (Oslo, Norway)
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Diagnosis of Primary Ciliary Dyskinesia: Discrepancy according to different algorithms
M. Nussbaumer (Bern, Switzerland), E. Kieninger (Bern, Switzerland), S. Tschanz (Bern, Switzerland), S. Savas (Bern, Switzerland), M. Goutaki (Bern, Switzerland), C. Kuehni (Bern, Switzerland), S. Blanchon (Bern, Switzerland), P. Latzin (Bern, Switzerland), L. Müller (Bern, Switzerland)
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Comparison Of Lung Clearence Index, Impulse Oscillometry And Spirometry in Children With Primary Ciliary Dyskinesia
U. Batu (Istanbul, Turkey), E. Erdem Eralp (Istanbul, Turkey), P. Ergenekon (Istanbul, Turkey), C. Yilmaz Yegit (Istanbul, Turkey), M. Cenk (Istanbul, Turkey), Y. Gokdemir (Istanbul, Turkey), B. Karadag (Istanbul, Turkey)
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Service delivery models for primary ciliary dyskinesia, an international comparison
B. Rubbo (Southampton, United Kingdom), L. Behan (Southampton, United Kingdom), C. Driessens (Southampton, United Kingdom), R. Athanazio (Sao Paulo, Brazil), A. Terance Benjamin (Coimbatore, India), V. Ramamoorthi Ram Ganesh (Coimbatore, India), J. Goodwin (Cork, Ireland), B. Karadag (Istanbul, Turkey), P. Kouis (Nicosia, Cyprus), A. Reula Martin (Valencia, Spain), K. Nielsen (Copenhagen, Denmark), M. Olm (Sao Paulo, Brazil), H. Omran (Muenster, Germany), J. Papon (Paris, France), A. Pinto (London, United Kingdom), N. Rumman (East Jerusalem,, Palestine), D. Snijders (Padova, Italy), Z. Zivkovic (Belgrade, Republic of Serbia), C. Parsons (Southampton, United Kingdom), C. E Kuehni (Bern, Switzerland), J. S Lucas (Southampton, United Kingdom)
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Respiratory symptoms and physical activity in patients with Primary Ciliary Dyskinesia in Switzerland
Y. Lam (Bern, Switzerland), L. Hüsler (Bern, Switzerland), E. Collaud (Bern, Switzerland), E. Pedersen (Bern, Switzerland), C. Kuehni (Bern, Switzerland), M. Goutaki (Bern, Switzerland)
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Does nasal irrigation (NI) improve outcomes in children with primary ciliary dyskinesia (PCD)?: a scoping review
A. Harris (Southampton (Hampshire), United Kingdom), J. Lucas (Southampton (Hampshire), United Kingdom), M. Goutaki (Bern, Switzerland)
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The role of genetics in diagnosing primary ciliary dyskinesia (PCD) in pediatric patients in Gothenburg, Sweden.
C. Kavouridou (Gothenburg, Sweden), K. Kötz (Gothenburg, Sweden)
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Case series of 25 children with Primary Ciliary Dyskinesia (PCD): evolution over the last 33 years
S. Iniesta González (Valencia, Spain), D. Quintero García (Valencia, Spain), Á. Moreno Palomino (Valencia, Spain), A. Barrés Fernández (Valencia, Spain), S. Castillo Corullón (Valencia, Spain)
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Face mask usage against SARS-CoV-2 among people with primary ciliary
E. Pedersen (Bern, Switzerland), E. Collaud (Bern, Switzerland), R. Mozun (Bern, Switzerland), K. Dexter (London, United Kingdom), C. Kruljac (Altona Victoria, Australia), H. Silberschmidt (WetzikonVictoria, Switzerland), J. Lucas (Southampton, United Kingdom), M. Goutaki (Bern, Switzerland), C. Kuehni (Bern, Switzerland)
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Depression and anxiety in mothers of home ventilated children before and during COVID-19 pandemic
P. Ergenekon (Istanbul, Turkey), C. Yilmaz Yegit (Istanbul, Turkey), M. Cenk (Istanbul, Turkey), N. Bas I?kizoglu (Istanbul, Turkey), E. Atag (Istanbul, Turkey), Y. Gokdemir (Istanbul, Turkey), E. Erdem Eralp (Istanbul, Turkey), B. Karadag (Istanbul, Turkey)
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Effect of standardized hands-on-training in caregivers of children with tracheostomy
C. Yegit (Istanbul, Turkey), A. Kilinc (Istanbul, Turkey), A. Gulieva (Istanbul, Turkey), E. Atag (Istanbul, Turkey), H. Yazan (Istanbul, Turkey), S. Can Oksay (Istanbul, Turkey), E. Kostereli (Istanbul, Turkey), S. Uzuner (Istanbul, Turkey), Z. Onay (Istanbul, Turkey), E. Hepkaya (Istanbul, Turkey), A. Ergenekon (Istanbul, Turkey), M. Kalyoncu (Istanbul, Turkey), F. Unal (Istanbul, Turkey), D. Mavi (Istanbul, Turkey), Y. Ayhan (Istanbul, Turkey), A. Collak (Istanbul, Turkey), M. Cenk (Istanbul, Turkey), H. Arslan (Istanbul, Turkey), A. Baskan (Istanbul, Turkey), G. Bilgin (Istanbul, Turkey), N. Bas Ikizoglu (Istanbul, Turkey), P. Ay (Istanbul, Turkey), S. Oktem (Istanbul, Turkey), Y. Gokdemir (Istanbul, Turkey), Z. Uyan (Istanbul, Turkey), E. Cakir (Istanbul, Turkey), S. Girit (Istanbul, Turkey), H. Cokugras (Istanbul, Turkey), B. Karadag (Istanbul, Turkey), F. Karakoc (Istanbul, Turkey), E. Erdem Eralp (Istanbul, Turkey)
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The effect of training the health care providers with simulation model on the care of patients with chronic tracheostomy
Z. Uyan (Istanbul, Turkey), E. Atag (Istanbul, Turkey), A. Ergenekon (Istanbul, Turkey), Y. Gökdemir (Istanbul, Turkey), O. Gökler (Istanbul, Turkey), P. Ay (Istanbul, Turkey), N. Bas I?kizoglu (Istanbul, Turkey), M. Cenk (Istanbul, Turkey), E. Erdem Eralp (Istanbul, Turkey), U. Sivrikaya (Istanbul, Turkey), S. Girit (Istanbul, Turkey), E. Çakir (Istanbul, Turkey), A. Kiliç (Istanbul, Turkey), H. Yazan (Istanbul, Turkey), S. Can Oksay (Istanbul, Turkey), E. Hepkaya (Istanbul, Turkey), B. Karadag (Istanbul, Turkey), F. Karakoç (Istanbul, Turkey), S. Öktem (Istanbul, Turkey)
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Respiratory Issues in patients with Spinal Muscular Atrophy (SMA) type 1, Treated with Disease-Modifying Therapy
M. Gaboli (Sevilla, Spain), M. López-Lobato (Sevilla, Spain), M. Madruga-Garrido (Sevilla, Spain), M. Borrero-Rodriguez (Sevilla, Spain), A. Palomo-Pavón (Sevilla, Spain), R. Escudero-Ávila (Sevilla, Spain)
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