Annual Congress Amsterdam 2011

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The value of patients as partners in research

Hot topics
Chairs: M. Fletcher (Warwick, United Kingdom), L. Buzermaniene (Vilnius, Lithuania)
Aims: At the end of this ELF organised session, the audience will have heard, discussed and gained information on:
- the benefits that can be gained from having patients as active partners in research;
- the challenges that might be faced when involving patients in research and how these can be overcome;
- examples of different levels of patient involvement in research and the outcomes;
- methods that can be employed to better engage the patient;
- insights into the level of information that should be provided to patients and the training required;
- mechanisms for increasing patient participation.

Patient involvement in clinical research: a new golden standard C. Oosterwijk (Da Soest, Netherlands)
The added value of active patient involvement in health research S. Buckland (Eastleigh, United Kingdom)
Workable instruments and tools realising active patient participation: a set of criteria from the patient's perspective T. Teunissen (Amersfoort, Netherlands)