Primary ciliary dyskinesia: sharing knowledge and experience across Europe

Target audience
This course is aimed at trainee and specialist levels in a number of disciplines. These include general paediatrics, adult and paediatric pulmonologists, ENT, allergy and pathology.
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Educational aims
  • To provide a comprehensive overview of the epidemiology of PCD
  • To detail the screening tools of PCD, and to provide hands-on experience in currently available machines
  • To improve the knowledge about ciliary beating and cilia ultrastructure
  • To focus on, and improve, practical problem-solving skills in PCD screening and diagnosis
  • To widen the knowledge about the clinical spectrum and presentation of PCD
  • To tackle and resolve the therapeutic challenges of PCD and of its complications
  • To encourage the participants to be involved in the pan-European collaborations exemplified by the ERS Task Force by taking part in future research projects
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PCD: burden of the disease in Europe
C. Kuehni (Bern, Switzerland)
 [+]  PDF journal article, handout or slides Slide presentation Screening for PCD
A. Bush (London, United Kingdom)
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Update on genetics of PCD
H. Omran (Freiburg, Germany)
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Ciliary beat frequency and cell culture in PCD diagnostic pathway
C. O'Callaghan (Leicester, London, United Kingdom)
 [+]  PDF journal article, handout or slides Slide presentation Cilia ultrastructure and PCD diagnosis
A. Cangiotti (Ancona, Italy), M. Cervasio (Naples, Italy)
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 [+]  PDF journal article, handout or slides When to suspect PCD: main clinical presenting features
C. Kuehni (Bern, Switzerland), S. Montella (Naples, Italy)
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Ear, nose and throat manifestations of PCD
M. Jorissen (Leuven, Belgium)
 [+]  PDF journal article, handout or slides Slide presentation Diagnostic approach to lung disease in PCD
D. Bilton (London, United Kingdom), F. Santamaria (Naples, Italy)
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Treatment approach to PCD
A. Barbato (Padova, Italy)
 [+]  PDF journal article, handout or slides Slide presentation 10 Living with PCD: improving quality of life
M. Pifferi (Pisa, Italy)
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 [+]  Multimedia files 11 The patient’s and family perspective
Fiona Copeland (PCD Family support group)
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 [+]  PDF journal article, handout or slides Slide presentation 12 Managing bronchiectasis and other lung complications
D. Bilton (London, United Kingdom), A. Barbato (Padova, Italy)
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13 A European PCD registry - Heymut Omran & Claudia Kuehni
H. Omran (Freiburg, Germany), C. Kuehni (Bern, Switzerland)
 [+]  PDF journal article, handout or slides Slide presentation 14 Clinical trials and outcome measures
K. Nielsen(Copenhagen, Denmark)
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 [+]  PDF journal article, handout or slides Slide presentation 15 The extended spectrum of ciliopathy
A. Bush (London, United Kingdom), F. Santamaria (Naples, Italy)
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